There was no doubt that my friends, colleagues and family members had noticed a marked difference in me—yet they remained mostly silent, perhaps out of courtesy.
Repeating myself frequently in conversations, asking questions that had already been answered just minutes prior, frustrations with recalling people’s names and number sequences (phone, addresses, passwords)—all signals of early-onset dementia. Regardless of what was noticeable or not to others, I knew I was not the same.
I was referred to a neurologist who specializes in cognitive disorders and went through myriad memory-related tests in addition to MRI diagnostics. I’m 69 and over three years into the initial diagnosis of mild cognitive impairment, confirmed as Alzheimer’s disease.
There have recently been exciting research breakthroughs on the Alzheimer’s front. Among them is a new drug being administered via infusion therapy. It has been proven in clinical trials to slow the disease’s decline by breaking up the protein amyloid plaque build-up in the nerve cells. That build-up is responsible for brain dysfunction.
It isn’t a cure but could add precious months of mental clarity to affected patients.
I was fortunate to qualify for the treatment after genetic testing and other requirements. My physicians, nurses and patient support group are a blessing to me and my wife.
Of course, as hopeful as I am for the potential to slow my cognitive decline and enjoy more quality time with my family, it is difficult to ignore the challenges they will soon endure. I recently engaged a psychologist to help me cope better with the future. The initial sessions have proven highly educational and gratifying. I am positively in a better place now.
My doctor’s advice is both simple and profound. His leading and listening skills allow me to reach deeper within and come to a quiet peace with regards to my future.
My prior mindset had been: It’s the elephant in the room—heavy and ever present. But my doctor has me laser focused now on living for life and not for death.
Yes, I must surely take care of my family affairs so as to not place additional burden on my spouse and children. But most importantly my doctor implores me to strive for hope and peace of mind for whatever future I have.
Acceptance of this diagnosis and a renewed “living for life” mentality is my new North Star, guiding me home. Not so much for personal gratification but for serenity with my faith, family and friends. I have been blessed.
